everylifecounts.ie | info@everylifecounts.ie| 01 879 2382
Every Life Counts is an organisation that supports families whose babies were diagnosed with a life limiting condition before and after birth. They provide a variety of supports, information and resources to families affected by a poor diagnosis in pregnancy.
softireland.com | soft.contactme@gmail.com| 1800 213 218
Soft Ireland provides information and support for families with a diagnosis of Trisomy 13/18 (Patau's/Edward's Syndrome).
Information and advice created by parents who received a life limiting diagnosis for their child
hospicefoundation.ie | info@hospicefoundation.ie | Bereavement Support Line 1800 80 70 77 | (01) 679 3188
The Irish Hospice Foundation provides end of life and bereavement supports and information.
Together For Short Lives is a UK charity. It provides excellent information to support anyone who is caring for, or has cared for, a child with a life-limiting or life-threatening condition- Please note support services are available in UK only.
View Leaflet | soft.contactme@gmail.com| 1800 213 218
SoftIreland has prepared a leaflet for parents who have received a fatal fetal or life-limiting diagnosis during pregnancy
alittlelifetime.ie | info@alittlelifetime.ie| 01 882 9030
A Little Lifetime provides a Facebook support group for parents who have received a fatal foetal diagnosis and have been told their baby will die in utero or shortly afterwards.
lauralynn.ie | info@lauralynn.ie| 01 2893151
LauraLynn provides specialist palliative and supportive care services to meet the needs of children (0-18 years old) with life-limiting conditions and their families in Ireland. LauraLynn provides care for the child while also supporting the whole family with targeted supports available to siblings, parents, grandparents and more. Care can be delivered at the hospice building in Dublin or in the family home with the Care in the Community Team providing care and supports in children’s homes across Leinster, Cork, Kerry and Limerick.
childrenspalliativehub.com | info@aiihpc.org| 01 491 2948
The Palliative Hub provides information for parents, carers and those involved in the care of a child with a life threatening or life limiting illness and who may require palliative care need in Ireland.
jackandjill.ie | info@jackandjill.ie| 045 894 538
Jack and Jill provides in-home nursing care and respite support throughout Ireland for children up to the age of 6 with severe to profound neurodevelopmental delay. This may include children with brain injury, genetic diagnosis, cerebral palsy, and undiagnosed conditions. Another key part of their service is end of life care for all children up to the age of 6, irrespective of diagnosis.