Rare Ireland What Comes After A Diagnosis
Advice and personal stories from parents of children with a rare diagnosis
SWAN Ireland (Syndromes Without A Name)
CIH Helen2023-09-28T09:37:58+00:00facebook.com/swan.ireland.77 |syndromeswithoutanameireland@gmail.com
SWAN Ireland is a new Irish support group, specifically dedicated for people who have a syndrome with no known diagnosis, and their families, living in Ireland.
Rare Diseases Ireland
CIH Helen2023-10-24T09:47:35+00:00The Rare Diseases Ireland website has useful information about rare diseases, undiagnosed conditions, clinical trials and and how to connect with patient organisations in Ireland and abroad
National Rare Diseases Office
CIH Helen2023-06-20T05:15:12+00:00hse.ie/NRDO | rare.diseases@mater.ie| tel:01 854 5065
The National Rare Diseases Office (NRDO) provides current and reliable information about genetic and rare diseases to patients, families and health professionals.
Rare Ireland
CIH Helen2023-10-24T09:49:11+00:00rareireland.ie | rareireland@gmail.com
A charity supporting families living with a rare condition.