cystinosis.ie | mail@cystinosis.ie | 01 687 5758

Cystinosis Ireland provides support and resources to families with cystinosis, from the early stages of diagnosis through to adulthood.

Cystinosis Ireland operate under three main pillars: research, awareness, and support. One of the most important aspects of Cystinosis Ireland is their provision of community of support and knowledge to every family affected by Cystinosis. They have a number of resources on their website.