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The Irish EDS Foundation raises awareness and offers support for those diagnosed with Ehler Danos Syndrome or Hypermobility Spectrum Disorder or seeking a diagnosis in Ireland

The Irish EDS Foundation raises awareness and offers support and information for those diagnosed with Ehlers Danlos Syndrome (EDS) or Hypermobility Spectrum Disorder (HSD) or seeking a diagnosis in Ireland.

They have a support group page for people with EDS/HSD and their families. If you have or think you may have Ehlers Danlos Syndrome or Hypermobility Spectrum Disorder, you can request to join their online support group. If you wish to join the support group you can send them a message and they will get back to you regarding the criteria needed to do so.