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The Neurofibromatosis Association of Ireland provides information and supports for patients diagnosed with Neurofibromatosis and their families.


Neurofibromatosis is a genetic disorder that affects more than 3,000 children and adults in Ireland. It causes tumours to grow on nerves throughout the body.
NF Ireland aim to be a voice for NF patients. Our primary aim is to inform sufferers and their families of the disorder. Depending on the needs of our members, we do our best to provide them with the most up to date information and help individuals lead full, healthy lives. Our services including a 24-hour Helpline.
The most important thing we do is raise awareness about what it means to live with NF.


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