rareconnect.org/en/ |

A safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages.

A safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages. RareConnect is divided into disease specific online communities and discussion groups around topics of interest which may be disease specific or concern issues which touch on many disease areas.