Order Free Book Here

Always in My Heart” is a book for 9-12 year olds who are experiencing grief

Children's Hospital Passport

A free resource from www.widgit.com to help communicate your child's needs and preferences to healthcare professionals. Please note this resource is from a UK website.

Download Resource Packs

www.Widgit.com provides a section with free symbol/widget based flashcards and booklets to help prepare children with additional needs for hospital appointments, procedures or staying in hospital. Please note this resource is from a UK website.

childreninhospital.ie/ | info@childreninhospital.ie| 01 290 3510

Children In Hospital Ireland provides play and recreation for children receiving inpatient and outpatient care in hospitals throughout Ireland.

Helping your child during a procedure

This short document explains how you can support your child during a procedure and how to prepare at home before a procedure

Using play to prepare your child for hospital

These videos show play ideas to prepare younger children and young people with learning difficulties for different tests or procedures. Please note this resource is from a UK website.

Preparing a child with a learning disability for hospital

This video shows interviews with parents of children with a learning disability. The parents share experiences and different ways they prepare their child for going to hospital, the doctor, the dentist or the optometrist. Please note this is resource is from a UK website.

HSE Health Passport - Apple Download | HSE Health Passport - Android/Samsung Download

The HSE Health Passport is now available as an App to support people with Intellectual Disability to communicate and express their unique needs when in a health care setting

Children's Hospital Passport

A resource created by Mercy Hospital Cork to help communicate your child's needs and preferences to heath-care professionals

whatwhychildreninhospital.org.uk/

This website provides lots of resources about going to hospitals, procedures and equipment. You can use the videos, information sheets and other resources to help you prepare your child and know what to expect before a procedure, appointment or hospital admission.

Hidden Disabilities Sunflower | Contact Form

The Hidden Disabilities Sunflower is a way for people with a disability or illness that might not always be obvious to others, to share that you have a hidden disability and may need extra support, understanding or more time.

iwa.ie | info@iwa.ie | 094 936 4054

The Disabled Drivers Association of Ireland provides supports to disabled drivers and passengers including; The EU Parking Card, Motoring Information & Advice, Advocacy, Ability Enterprises & Shopmobility.

Shamrock Squad Facebook | shamrocksquadadventures@gmail.com

Shamrock squad are a community of special needs families on the mission to make outdoors accessible for all needs.

varietyireland.org/ | info@varietyireland.org| 01 437 0323

Variety - The Children's Charity of Ireland provides specially adapted trikes and pre-loved or new educational devices to children with disabilities.

invisibledisabilityireland.com/ | invisibledisabilityireland@gmail.com|

Invisible Disability Ireland empowers, support, advocates and provides information, awareness and understanding of invisible and hidden disabilities.

helium.ie/ | hello@helium.ie| 044 939 6960

Helium Arts is the national children’s arts and health charity. They provide free creative art workshops in community venues throughout Ireland, as well as online and in hospitals for children and young people aged 6-15 years living with lifelong physical health conditions that require ongoing medical support. Examples of conditions include diabetes, epilepsy, cystic fibrosis, allergies, heart conditions, chronic asthma, spina bifida, juvenile arthritis, rare or complex conditions and many more.

Facebook Support Group

DCA, DA and Carer's Allowance Information group is a very active parent group with members sharing advice based on their experiences applying for a range of government supports

cianskennels.ie/ | info@cianskennels.ie| 085 1488660

Cian’s Kennels bring pets closer to sick children and their families at CHI Crumlin by arranging visits from their dog during their hospital stay.

everylifecounts.ie | info@everylifecounts.ie| 01 879 2382

Every Life Counts is an organisation that supports families whose babies were diagnosed with a life limiting condition before and after birth. They provide a variety of supports, information and resources to families affected by a poor diagnosis in pregnancy.

oco.ie/ | ococomplaint@oco.ie| 1800 20 20 40

The Ombudsman for Children (OCO)_ investigates complaints about services provided to children by public organisations. The service is free and independent. The OCO promotes the rights and welfare of young people under 18 years of age living in Ireland.

www.makeawish.ie | info@makeawish.ie| 01 2052007

Make-A-Wish Ireland aims to grant the wishes of children with life-threatening medical conditions, to bring hope, strength and happiness

carealliance.ie | info@carealliance.ie| 01 874 7776

The Online Family Carer Support Group offers support to nearly 4,000 carers for children and adults all over Ireland

SteppingUp provides advice, personal stories and useful checklists to help young people and parents prepare to transition to adult healthcare services

patientadvocacyservice.ie| Contact Form | 0818 293003

Patient Advocacy Services provide independent, confidential support to help make a formal complaint against a public hospital in Ireland. This includes complaints about CHI children's hospitals, regional/general hospitals, maternity hospitals and specialist hospitals and covers inpatient, outpatient/diagnostic and emergency care.

Things We Wished We Knew

Information and advice created by parents who received a life limiting diagnosis for their child

iwa.ie | info@iwa.ie | 01 818 6400

The Irish Wheelchair Association supports people of all ages with physical disabilities to live active, equal and independent lives.

Telephone 01 878 4212
Temple Street Hospital holds sibling camps to help siblings understand the hospital and their siblings condition and to provide therapeutic support.

sibs.org.uk |

The Sibs website provides a range of useful information to help you support the siblings of a child with medical or additional needs – Note support services are UK only

carealliance.ie | info@carealliance.ie| 01 874 7776

Care Alliance provides an online support group for family carers through Ireland. They also provide return to work training and useful information for family carers.

Making Memories

This document was created by Irish mothers and shares how they approached creating their own memory boxes

hospicefoundation.ie | info@hospicefoundation.ie | Bereavement Support Line 1800 80 70 77 | (01) 679 3188

The Irish Hospice Foundation provides end of life and bereavement supports and information.

citizensinformation.ie | | 0818 07 4000

Citizen’s Information Bureau provides information, advice and advocacy for people living in Ireland about topics such as health services, government supports and benefits, finances, employment and much more

cla.ie/fidelma-house | info@cla.ie| 021 4949801

Fidelma House is a home-from-home accommodation, close to to the Mercy University Hospital, Cork, which the Children’s Leukaemia Association can offer to families while their child is being cared for in the Children’s Leukaemia Unit.

financialwellbeing.ie | info@financialwellbeing.ie| 021 4823635

Financial Wellbeing advises on the many positive steps parents can take to significantly improve their child who has additional needs future financial independence.

childrensgriefcentre.ie | info@childrensgriefcentre.ie| 061 224 627/a>

Children’s Grief Centre provides a professional, safe, accepting and compassionate listening service to help your child work through his or her feelings.

brucolumbanus.com | info@brucolumbanus.com | 021 434 5754

Brú Columbanus provides a ‘home from home’ accommodation for the relatives of seriously ill patients in Cork Hospitals and the Hospice, in particular to relatives of sick children. Brú Columbanus is an independent charity completely reliant on donations and fundraising initiatives to cover the running costs of the house. The accommodation is provided free of charge

familycarers.ie | careline@familycarers.ie.| Freephone Careline- 1800 240724

Family Carers Ireland provides information and supports to anyone caring for a child or adult with additional needs, physical or intellectual disabilities, those with palliative care needs or those living with chronic illnesses, mental health challenges or addiction

barretstown.org | info@barretstown.org| 045 864 115

Barretstown offers free, specially designed camps and programmes for children living with serious illness, and their families. – supported behind the scenes by 24 hour on site medical and nursing care

familycarers.ie | youngcarers@familycarers.ie| Freephone Careline- 1800 240724

Family Carers Ireland provides a range of support to help Siblings/Young Carers and Young Adult Carers look after themselves, these include: Individual and Family Support, Young Carer Support Groups, National Events, Free Young Carer Card, Young Carers in Education

tggf.ie | info@thegavinglynnfoundation.ie| 01 201 6030

The Gavin Glynn Foundation helps families of children battling cancer to travel overseas for treatment not available in Ireland.

littleblueheroes.org | info@littleblueheroes.org | 086 171 1433

Little Blue Heroes provide supports to children with life-limiting and life threatening illnesses and their family.

clionas.ie | info@clionas.ie | 061 331333

Cliona’s Foundation provides financial assistance directly to parents of children with life-limiting or chronic, complex care needs across Ireland to help with the non-medical expenses related to caring for their child.

bumbleance.com | booking@bumbleance.com | 086 145 1470

BUMBLEance provides safe, comfortable and fun transportation for children who require transportation between their home anywhere in Ireland and children’s hospitals for appointments or hospital admissions, hospices, regional hospitals, and respite centres nationwide.

hughshouse.ie | help@hughshouse.ie

Hugh's House provides free family accommodation 365 days a year for parents who have ill children in Temple Street, Holles Street, The Coombe and Rotunda Hospitals.

rmhc.ie | ronaldhouse@rmhc.ie | 01 456 0435

Ronald McDonald House provides low cost accommodation to families with a child undergoing treatment in Crumlin Children's Hospital.

anamcara.ie | info@anamcara.ie| (01) 4045378

Anam Cara is a national organisation providing information, resources along with online and face to face support services to parents after the death of their child.

firstlight.ie | info@firstlight.ie| Office- 01 8732711 | National 24-Hour Helpline-1800 391 391

Firstlight provides support to families suddenly bereaved of a child up to 18 years.

alittlelifetime.ie  | info@alittlelifetime.ie| 01 8829030

A Little Lifetime provides free supports and services to parents whose baby has died around the time of birth or shortly afterwards and to parents who receive a diagnosis of fatal foetal abnormality in pregnancy

feileacain.ie | admin@feileacain.ie | 085 2496464

Féileacáin provides support to anyone affected by the death of a baby during or soon after pregnancy.

pregnancyandinfantloss.ie 

The Pregnancy and Infant Loss Ireland website is a directory of information and supports for parents bereaved parents during pregnancy or infancy.

lauralynn.ie | info@lauralynn.ie| 01 2893151

LauraLynn provides specialist palliative and supportive care services to meet the needs of children (0-18 years old) with life-limiting conditions and their families in Ireland. LauraLynn provides care for the child while also supporting the whole family with targeted supports available to siblings, parents, grandparents and more. Care can be delivered at the hospice building in Dublin or in the family home with the Care in the Community Team providing care and supports in children’s homes across Leinster, Cork, Kerry and Limerick.

childrenspalliativehub.com | info@aiihpc.org| 01 491 2948

The Palliative Hub provides information for parents, carers and those involved in the care of a child with a life threatening or life limiting illness and who may require palliative care need in Ireland.

jackandjill.ie | info@jackandjill.ie| 045 894 538

Jack and Jill provides in-home nursing care and respite support throughout Ireland for children up to the age of 6 with severe to profound neurodevelopmental delay. This may include children with brain injury, genetic diagnosis, cerebral palsy, and undiagnosed conditions. Another key part of their service is end of life care for all children up to the age of 6, irrespective of diagnosis.

bumbleance.com/about-bumbleance/angel-trips | booking@bumbleance.com | 086 145 1470

An Angel Trip is designed for a terminally ill child who is making his or her final journey on earth before he or she grows their Angel Wings

barretstown.org | info@barretstown.org| 045 864 115

The bereavement weekends at Barretstown offer the whole family a supportive environment within which they can spend quality time together, find support, share their experience of loss and find ways to look to the journey ahead

rainbowsireland.ie | ask@rainbowsireland.ie | 01 4734175

Rainbows provides support groups for children who have experienced grief and loss due to bereavement or parental separation.

firstlight.ie | info@firstlight.ie| Office- 01 8732711 | National 24-Hour Helpline-1800 391 391

Play therapy is a service provided by FirstLight for children following a bereavement

barnardos.ie | info@barnardos.ie| (01) 453 0355

Barnardo’s Children’s Bereavement Service works with families to help them support their child through the grieving process.

Order Free Book Here
Online Book

This book was designed as a resource for young people themselves to use as they navigate their way through bereavement and loss.

jacintassmile.ie | info@jacintassmile.ie| 087 422 0000

Jacinta’s smile provides a range of supports for children and young people who have lost a sibling

childhoodbereavement.ie |  icbn@hospicefoundation.ie| 01 679 3188

ICBN provides information about supporting children, siblings and adolescents during grief and loss.

https://www.facebook.com/nilmdtsireland | nilmdtsireland@gmail.com| 083 377 4777

Now I Lay Me Down To Sleep provides free photography services for babies who will never have the opportunity to have professional photography i.e. babies who were stillborn, have died in the early days after birth, have never left the hospital, or who are sent home or to a hospice.

Additional Needs Payment

This is a means tested payment payment to help you with an expense that you cannot pay from your weekly income. It can be used to assist with funeral expenses. 

Rosabels Room to Heal Fund | info@hospicefoundation.ie | (01) 679 3188

Rosabel's Room to Heal Fund provides financial support to families when an infant or child aged 0-21 dies in Ireland