abiireland.ie | hello@abiireland.ie| 01 280 4164
Acquired Brain Injury Ireland provide a range of expert clinical services and supports specific to the needs of each person with a brain injury.
abiireland.ie | hello@abiireland.ie| 01 280 4164
Acquired Brain Injury Ireland provide a range of expert clinical services and supports specific to the needs of each person with a brain injury.
arccancersupport.ie | info@arccancersupport.ie| 01 215 0250
ARC provide psychological, emotional, educational and practical support in a warm and welcoming environment to people with cancer, and those who care for them.
Always in My Heart” is a book for 9-12 year olds who are experiencing grief
A free resource from www.widgit.com to help communicate your child's needs and preferences to healthcare professionals. Please note this resource is from a UK website.
www.Widgit.com provides a section with free symbol/widget based flashcards and booklets to help prepare children with additional needs for hospital appointments, procedures or staying in hospital. Please note this resource is from a UK website.
childreninhospital.ie/ | info@childreninhospital.ie| 01 290 3510
Children In Hospital Ireland provides play and recreation for children receiving inpatient and outpatient care in hospitals throughout Ireland.
Helping your child during a procedure
This short document explains how you can support your child during a procedure and how to prepare at home before a procedure
Using play to prepare your child for hospital
These videos show play ideas to prepare younger children and young people with learning difficulties for different tests or procedures. Please note this resource is from a UK website.
Preparing a child with a learning disability for hospital
This video shows interviews with parents of children with a learning disability. The parents share experiences and different ways they prepare their child for going to hospital, the doctor, the dentist or the optometrist. Please note this is resource is from a UK website.
HSE Health Passport - Apple Download | HSE Health Passport - Android/Samsung Download
The HSE Health Passport is now available as an App to support people with Intellectual Disability to communicate and express their unique needs when in a health care setting
A resource created by Mercy Hospital Cork to help communicate your child's needs and preferences to heath-care professionals
whatwhychildreninhospital.org.uk/
This website provides lots of resources about going to hospitals, procedures and equipment. You can use the videos, information sheets and other resources to help you prepare your child and know what to expect before a procedure, appointment or hospital admission.
Hidden Disabilities Sunflower | Contact Form
The Hidden Disabilities Sunflower is a way for people with a disability or illness that might not always be obvious to others, to share that you have a hidden disability and may need extra support, understanding or more time.
iwa.ie | info@iwa.ie | 094 936 4054
The Disabled Drivers Association of Ireland provides supports to disabled drivers and passengers including; The EU Parking Card, Motoring Information & Advice, Advocacy, Ability Enterprises & Shopmobility.
Shamrock Squad Facebook | shamrocksquadadventures@gmail.com
Shamrock squad are a community of special needs families on the mission to make outdoors accessible for all needs.
varietyireland.org/ | info@varietyireland.org| 01 437 0323
Variety - The Children's Charity of Ireland provides specially adapted trikes and pre-loved or new educational devices to children with disabilities.
invisibledisabilityireland.com/ | invisibledisabilityireland@gmail.com|
Invisible Disability Ireland empowers, support, advocates and provides information, awareness and understanding of invisible and hidden disabilities.
helium.ie/ | hello@helium.ie| 044 939 6960
Helium Arts is the national children’s arts and health charity. They provide free creative art workshops in community venues throughout Ireland, as well as online and in hospitals for children and young people aged 6-15 years living with lifelong physical health conditions that require ongoing medical support. Examples of conditions include diabetes, epilepsy, cystic fibrosis, allergies, heart conditions, chronic asthma, spina bifida, juvenile arthritis, rare or complex conditions and many more.
DCA, DA and Carer's Allowance Information group is a very active parent group with members sharing advice based on their experiences applying for a range of government supports
cianskennels.ie/ | info@cianskennels.ie| 085 1488660
Cian’s Kennels bring pets closer to sick children and their families at CHI Crumlin by arranging visits from their dog during their hospital stay.
everylifecounts.ie | info@everylifecounts.ie| 01 879 2382
Every Life Counts is an organisation that supports families whose babies were diagnosed with a life limiting condition before and after birth. They provide a variety of supports, information and resources to families affected by a poor diagnosis in pregnancy.
oco.ie/ | ococomplaint@oco.ie| 1800 20 20 40
The Ombudsman for Children (OCO)_ investigates complaints about services provided to children by public organisations. The service is free and independent. The OCO promotes the rights and welfare of young people under 18 years of age living in Ireland.
www.makeawish.ie | info@makeawish.ie| 01 2052007
Make-A-Wish Ireland aims to grant the wishes of children with life-threatening medical conditions, to bring hope, strength and happiness
carealliance.ie | info@carealliance.ie| 01 874 7776
The Online Family Carer Support Group offers support to nearly 4,000 carers for children and adults all over Ireland
aoibheannspinktie.ie | Contact form | 01 2401332
Aoibheann’s Pink Tie provides practical, social, and financial supports to children diagnosed with cancer, and their families, in Ireland. Aoibheann's Lighthouse is a respite home for families of children with cancer. It is located a short stroll from Crumlin Hospital and provides a home from home to families looking for a short or longer stay.
patientadvocacyservice.ie| Contact Form | 0818 293003
Patient Advocacy Services provide independent, confidential support to help make a formal complaint against a public hospital in Ireland. This includes complaints about CHI children's hospitals, regional/general hospitals, maternity hospitals and specialist hospitals and covers inpatient, outpatient/diagnostic and emergency care.
Information and advice created by parents who received a life limiting diagnosis for their child
iwa.ie | info@iwa.ie | 01 818 6400
The Irish Wheelchair Association supports people of all ages with physical disabilities to live active, equal and independent lives.
Telephone 01 878 4212
Temple Street Hospital holds sibling camps to help siblings understand the hospital and their siblings condition and to provide therapeutic support.
The Sibs website provides a range of useful information to help you support the siblings of a child with medical or additional needs – Note support services are UK only
carealliance.ie | info@carealliance.ie| 01 874 7776
Care Alliance provides an online support group for family carers through Ireland. They also provide return to work training and useful information for family carers.
This document was created by Irish mothers and shares how they approached creating their own memory boxes
hospicefoundation.ie | info@hospicefoundation.ie | Bereavement Support Line 1800 80 70 77 | (01) 679 3188
The Irish Hospice Foundation provides end of life and bereavement supports and information.
citizensinformation.ie | | 0818 07 4000
Citizen’s Information Bureau provides information, advice and advocacy for people living in Ireland about topics such as health services, government supports and benefits, finances, employment and much more
cla.ie/fidelma-house | info@cla.ie| 021 4949801
Fidelma House is a home-from-home accommodation, close to to the Mercy University Hospital, Cork, which the Children’s Leukaemia Association can offer to families while their child is being cared for in the Children’s Leukaemia Unit.
financialwellbeing.ie | info@financialwellbeing.ie| 021 4823635
Financial Wellbeing advises on the many positive steps parents can take to significantly improve their child who has additional needs future financial independence.
brucolumbanus.com | info@brucolumbanus.com | 021 434 5754
Brú Columbanus provides a ‘home from home’ accommodation for the relatives of seriously ill patients in Cork Hospitals and the Hospice, in particular to relatives of sick children. Brú Columbanus is an independent charity completely reliant on donations and fundraising initiatives to cover the running costs of the house. The accommodation is provided free of charge
familycarers.ie | careline@familycarers.ie.| Freephone Careline- 1800 240724
Family Carers Ireland provides information and supports to anyone caring for a child or adult with additional needs, physical or intellectual disabilities, those with palliative care needs or those living with chronic illnesses, mental health challenges or addiction
barretstown.org | info@barretstown.org| 045 864 115
Barretstown offers free, specially designed camps and programmes for children living with serious illness, and their families. – supported behind the scenes by 24 hour on site medical and nursing care
bodywhys.ie | alex@bodywhys.ie| 01 210 7906
Bodywhys – The Eating Disorders Association of Ireland, is the national voluntary organisation supporting both those affected by eating disorders, as well as their families.
familycarers.ie | youngcarers@familycarers.ie| Freephone Careline- 1800 240724
Family Carers Ireland provides a range of support to help Siblings/Young Carers and Young Adult Carers look after themselves, these include: Individual and Family Support, Young Carer Support Groups, National Events, Free Young Carer Card, Young Carers in Education
tggf.ie | info@thegavinglynnfoundation.ie| 01 201 6030
The Gavin Glynn Foundation helps families of children battling cancer to travel overseas for treatment not available in Ireland.
littleblueheroes.org | info@littleblueheroes.org | 086 171 1433
Little Blue Heroes provide supports to children with life-limiting and life threatening illnesses and their family.
clionas.ie | info@clionas.ie | 061 331333
Cliona’s Foundation provides financial assistance directly to parents of children with life-limiting or chronic, complex care needs across Ireland to help with the non-medical expenses related to caring for their child.
bumbleance.com | booking@bumbleance.com | 086 145 1470
BUMBLEance provides safe, comfortable and fun transportation for children who require transportation between their home anywhere in Ireland and children’s hospitals for appointments or hospital admissions, hospices, regional hospitals, and respite centres nationwide.
hughshouse.ie | help@hughshouse.ie
Hugh's House provides free family accommodation 365 days a year for parents who have ill children in Temple Street, Holles Street, The Coombe and Rotunda Hospitals.
rmhc.ie | ronaldhouse@rmhc.ie | 01 456 0435
Ronald McDonald House provides low cost accommodation to families with a child undergoing treatment in Crumlin Children's Hospital.
anamcara.ie | info@anamcara.ie| (01) 4045378
Anam Cara is a national organisation providing information, resources along with online and face to face support services to parents after the death of their child.
firstlight.ie | info@firstlight.ie| Office- 01 8732711 | National 24-Hour Helpline-1800 391 391
Firstlight provides support to families suddenly bereaved of a child up to 18 years.
alittlelifetime.ie | info@alittlelifetime.ie| 01 8829030
A Little Lifetime provides free supports and services to parents whose baby has died around the time of birth or shortly afterwards and to parents who receive a diagnosis of fatal foetal abnormality in pregnancy
feileacain.ie | admin@feileacain.ie | 085 2496464
Féileacáin provides support to anyone affected by the death of a baby during or soon after pregnancy.
The Pregnancy and Infant Loss Ireland website is a directory of information and supports for parents bereaved parents during pregnancy or infancy.
lauralynn.ie | info@lauralynn.ie| 01 2893151
LauraLynn provides specialist palliative and supportive care services to meet the needs of children (0-18 years old) with life-limiting conditions and their families in Ireland. LauraLynn provides care for the child while also supporting the whole family with targeted supports available to siblings, parents, grandparents and more. Care can be delivered at the hospice building in Dublin or in the family home with the Care in the Community Team providing care and supports in children’s homes across Leinster, Cork, Kerry and Limerick.
childrenspalliativehub.com | info@aiihpc.org| 01 491 2948
The Palliative Hub provides information for parents, carers and those involved in the care of a child with a life threatening or life limiting illness and who may require palliative care need in Ireland.
jackandjill.ie | info@jackandjill.ie| 045 894 538
Jack and Jill provides in-home nursing care and respite support throughout Ireland for children up to the age of 6 with severe to profound neurodevelopmental delay. This may include children with brain injury, genetic diagnosis, cerebral palsy, and undiagnosed conditions. Another key part of their service is end of life care for all children up to the age of 6, irrespective of diagnosis.
bumbleance.com/about-bumbleance/angel-trips | booking@bumbleance.com | 086 145 1470
An Angel Trip is designed for a terminally ill child who is making his or her final journey on earth before he or she grows their Angel Wings
barretstown.org | info@barretstown.org| 045 864 115
The bereavement weekends at Barretstown offer the whole family a supportive environment within which they can spend quality time together, find support, share their experience of loss and find ways to look to the journey ahead
rainbowsireland.ie | ask@rainbowsireland.ie | 01 4734175
Rainbows provides support groups for children who have experienced grief and loss due to bereavement or parental separation.
firstlight.ie | info@firstlight.ie| Office- 01 8732711 | National 24-Hour Helpline-1800 391 391
Play therapy is a service provided by FirstLight for children following a bereavement
barnardos.ie | info@barnardos.ie| (01) 453 0355
Barnardo’s Children’s Bereavement Service works with families to help them support their child through the grieving process.
Order Free Book Here
Online Book
This book was designed as a resource for young people themselves to use as they navigate their way through bereavement and loss.
jacintassmile.ie | info@jacintassmile.ie| 087 422 0000
Jacinta’s smile provides a range of supports for children and young people who have lost a sibling
childhoodbereavement.ie | icbn@hospicefoundation.ie| 01 679 3188
ICBN provides information about supporting children, siblings and adolescents during grief and loss.
https://www.facebook.com/nilmdtsireland | nilmdtsireland@gmail.com| 083 377 4777
Now I Lay Me Down To Sleep provides free photography services for babies who will never have the opportunity to have professional photography i.e. babies who were stillborn, have died in the early days after birth, have never left the hospital, or who are sent home or to a hospice.
Rosabels Room to Heal Fund | info@hospicefoundation.ie | (01) 679 3188
Rosabel's Room to Heal Fund provides financial support to families when an infant or child aged 0-21 dies in Ireland