Children in Hospital Ireland Information Hub

Organisation

The Information Hub for Children in Hospital Ireland

Organisation

Widgit/Symbol Flashcards and Booklets – Hospital admissions, appointments and procedures

2024-02-20T09:57:22+00:00

Download Resource Packs

www.Widgit.com provides a section with free symbol/widget based flashcards and booklets to help prepare children with additional needs for hospital appointments, procedures or staying in hospital. Please note this resource is from a UK website.

Mental Health Commission Ireland

2023-09-11T11:57:54+00:00

mhcirl.ie/ | info@mhcirl.ie| 01 636 2400

The work of MHC includes regulating in-patient mental health services and setting standards for high quality services across mental health services. MHC also provides useful information for young people and families about finding support, understanding services and guides for young people accessing in-patient mental health services.

Preparing a child with a learning disability for hospital – video

2024-02-19T07:40:00+00:00

Preparing a child with a learning disability for hospital

This video shows interviews with parents of children with a learning disability. The parents share experiences and different ways they prepare their child for going to hospital, the doctor, the dentist or the optometrist. Please note this is resource is from a UK website.

Child friendly videos and information about hospital tests and procedures

2023-08-11T05:34:19+00:00

whatwhychildreninhospital.org.uk/

This website provides lots of resources about going to hospitals, procedures and equipment. You can use the videos, information sheets and other resources to help you prepare your child and know what to expect before a procedure, appointment or hospital admission.

National Centre for Inherited Metabolic Disorders

2023-09-04T09:19:05+00:00

metabolic.ie | metabolic@cuh.ie | 01 878 4317

The National Centre for Inherited Metabolic Disorders (NCIMD), also known as the Metabolic Unit, is located at Children’s University Hospital, Temple Street. It is the tertiary care referral centre for the investigation and treatment of individuals suspected of having a metabolic disorder in Ireland.

Orphanet

2023-06-26T05:43:04+00:00

orpha.net/

Orphanet aims to provide high-quality information on rare diseases. The website allows you search for information on a rare disease and also provides information about expert centres, patient organisations, clinical trials and research projects related to that disease.

Helium Arts

2023-10-24T12:14:05+00:00

helium.ie/ | hello@helium.ie| 044 939 6960

Helium Arts is the national children’s arts and health charity. They provide free creative art workshops in community venues throughout Ireland, as well as online and in hospitals for children and young people aged 6-15 years living with lifelong physical health conditions that require ongoing medical support. Examples of conditions include diabetes, epilepsy, cystic fibrosis, allergies, heart conditions, chronic asthma, spina bifida, juvenile arthritis, rare or complex conditions and many more.

Crann – Solutions for families with neuro-physical disabilities (Cork, Kerry & wider Munster region)

2023-10-23T12:23:15+00:00

| info@cranncentre.ie| 021 428 9267

Crann – Solutions for Families living with neuro-physical disability Crann provides solutions for children, adults & families living with neuro-physical disabilities at their centre in Co. Cork. They support children who live in Cork, Kerry and the wider Munster region with neuro-physical disabilities including Spinal Cord Injury, Spina Bifida, Hydrocephalus, Cerebral Palsy, Muscular Dystrophy, Osteogenesis Imperfecta, Arthrogryposis, Spinal Muscular Atrophy, Stroke, Multiple Sclerosis.

Every Life Counts – Online Outreach for parents

2023-10-18T09:18:50+00:00

everylifecounts.ie | info@everylifecounts.ie| 01 879 2382

Every Life Counts is an organisation that supports families whose babies were diagnosed with a life limiting condition before and after birth. They provide a variety of supports, information and resources to families affected by a poor diagnosis in pregnancy.

Family Carers Ireland – Learning and Education

2023-05-30T05:40:17+00:00

familycarers.ie/learning-education | careline@familycarers.ie.| Freephone Careline- 1800 240724

Family Carers Ireland provides information and supports to anyone caring for a child or adult with additional needs, physical or intellectual disabilities, those with palliative care needs or those living with chronic illnesses, mental health challenges or addiction

HSE Living Well Building Better Carers Program

2023-04-04T09:19:43+00:00

Living Well Program | helenodriscollqol@outlook.ie| 087 3964 307

Building Better Carers program is for those caring for a child, teenager, young adult, a parent, family member, a loved one or friend. Classes help build the participants’ confidence in their ability to manage their caregiving tasks and maintain a fulfilling life.

Bru Columbanus – Cork Hospitals

2023-10-02T06:09:44+00:00

brucolumbanus.com | info@brucolumbanus.com | 021 434 5754

Brú Columbanus provides a ‘home from home’ accommodation for the relatives of seriously ill patients in Cork Hospitals and the Hospice, in particular to relatives of sick children. Brú Columbanus is an independent charity completely reliant on donations and fundraising initiatives to cover the running costs of the house. The accommodation is provided free of charge

Family Carers – Young Carers – Sibling Supports

2023-10-26T06:37:53+00:00

familycarers.ie | youngcarers@familycarers.ie| Freephone Careline- 1800 240724

Family Carers Ireland provides a range of support to help Siblings/Young Carers and Young Adult Carers look after themselves, these include: Individual and Family Support, Young Carer Support Groups, National Events, Free Young Carer Card, Young Carers in Education

LauraLynn Ireland

2023-10-27T11:52:02+00:00

lauralynn.ie | info@lauralynn.ie| 01 2893151

LauraLynn provides specialist palliative and supportive care services to meet the needs of children (0-18 years old) with life-limiting conditions and their families in Ireland. LauraLynn provides care for the child while also supporting the whole family with targeted supports available to siblings, parents, grandparents and more. Care can be delivered at the hospice building in Dublin or in the family home with the Care in the Community Team providing care and supports in children’s homes across Leinster, Cork, Kerry and Limerick.

Jack and Jill The Childrens Foundation

2023-09-28T09:19:42+00:00

jackandjill.ie | info@jackandjill.ie| 045 894 538

Jack and Jill provides in-home nursing care and respite support throughout Ireland for children up to the age of 6 with severe to profound neurodevelopmental delay. This may include children with brain injury, genetic diagnosis, cerebral palsy, and undiagnosed conditions. Another key part of their service is end of life care for all children up to the age of 6, irrespective of diagnosis.

Now I Lay Me Down to Sleep Ireland

2023-06-07T05:15:33+00:00

https://www.facebook.com/nilmdtsireland | nilmdtsireland@gmail.com| 083 377 4777

Now I Lay Me Down To Sleep provides free photography services for babies who will never have the opportunity to have professional photography i.e. babies who were stillborn, have died in the early days after birth, have never left the hospital, or who are sent home or to a hospice.

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